Been a Bad Blogger...

I have been such a bad blogger lately!!! I really need to update you guys on all the wedding planning that has been going on.

Things in my life have been crazy. Holidays, hospitals, loads of work, a bad life/ work balance. And for some unknown reason I decided to really get into my wedding planning now. {Call me crazy}

I will come back and up-date more but I think I have a date, venue and wedding planner sorted! See you soon...

A Week in Hospital...

So Evan has epilepsy, as I am sure you have realised by now! He has been having lots of seizures and they are increasing every year. So far this year to date he has had 50, a number not to joke about. It averages out to around 5 a month. To make Evan's more dangerous he also has clusters of seizures, this is 2 or more seizures with small amounts of time between them. It gives the body no time to repair and re-set, so it increases sudden epilepsy death syndrome (SUDEP) 

It's believed that around 500 deaths each year are caused by SUDEP in the UK alone, so it's no joking matter and with Evan's high risk we needed to try and get this epilepsy under control. So we have been refereed to Dr Ernest Somerville who is head of the epilepsy centre at Prince of Wales Hospital.

As soon as they had seen Evan they knew he had a bad case and that all the allergic reactions to medications hasn't been helping, resulting in poor treatment of his condition. They wanted to send us to hospital for a week for a VEEG. A video EEG that tracks the brain 24 hours a day and would capture any seizures he had. Evan was very nervous about this and really didn't want to go...

As a result of the stress and worry he had 4 seizures the day we had to go for the VEEG. He was hospitalised and then later transported by ambulance from our local area to the hospital in Sydney. Poor thing was really sick and unfortunately they didn't catch any seizures with the EEG. We spent the week in hospital with no action, but we did get a new medication to stop any clusters in the future and also we are starting to increase the current medication levels. {In the bast he has lost his vision from this so it will be very slowly over months and months}

It feels good to be getting results & help from skilled specialists, but I think I was hoping they could see the seizure and magically fix him! I guess only time will tell how he goes.

Set the date {3rd time lucky}...

So we set the {real} date! No bull shit this time... lol - things are actually booked!

11th December, 2013

I was so against a 2013 wedding due to the whole 'thirteen' lucky thing, but with a cool date like 11-12-13 why wouldn't we! It's a Wednesday too and Wednesday was always a really lucky/ favourite day for me. I'm excited to have plans in motion. We are putting a deposit down soon, just need to pick the place.

The real count down is on now...